http://www.lupus.org LUPUS FOUNDATION OF AMERICA
http://exchanges.webmd.com/lupus-exchange WebMD ONLINE SUPPORT FOR ALL CHRONIC ILLNESSES
http://www.lsnflorida.org/ NORTHWEST FLORIDA AND SOUTHERN ALABAMA
http://www.dailystrength.org/ ONLINE SUPPORT FOR ALL CHRONIC ILLNESSES
- The Lupus Foundation of America (lupuschronicles.com)
As you can see, I started this post by beginning to list support groups from which we can all benefit. After all, on those down days and on days when I just can’t get out of bed, I may look perfectly normal but I sure as heck don’t feel it. Those are the days when I need to know that people understand, that people have been where I’ve been and know the meaning of “but you don’t look sick!”
I can only regale my family and friends with tales of woe so often before I feel like
‘persona non-grata.’ Then it’s time to turn to ‘ Dr. Google’ or other search engines or other ways to find support. Support, to me, consists of people who have walked a mile in my shoes and with whom I can commiserate or find suggestions as to how they handle the situation that I might not have thought of.
This serves several purposes, not the least of which is to show me that I’m not alone, that I have a lot of company in this world, and a lot of company that doesn’t want to see me wallow in
self-pity; in fact they want to see me get off my ‘pity-pot,’ they know why it’s not good to stay on it and they have suggestions for how to get off it.
I started to list several support groups that are available, then I realized my list would be the same as Google or Yahoo’s or Bing’s or whatever search engine you might use. In addition to online support groups, local churches may have support groups. Another approach would be to call the local hospital and ask someone in the social work department and see if they can direct you.
Also, most insurance companies do have the benefit for some sort of counseling; use it if you feel you need to. They may have a limit on the number of visits per year but it is worth investigating.
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