How do You Occupy your Time?

Posted by: Annie on: August 25, 2011

Yesterday, the armchair philosopher in me emerged. On Social Security Disability for 10 years, I’m often asked, “What do you do to occupy your time? What keeps you busy?” Or my personal favorite, don’t you want to work, be productive?

If I had a nickel for every time I wished that going back to work was a possibility, I’d be rich. I loved the nursing I did before lupus robbed me of lots of life, but continuing to work wasn’t to be.

Some retrospection followed. In between doctor’s appointments, tests, laboratory appointments, I manage to belong to lupus support groups, fibromyalgia support groups,  I have several blogs and I also volunteer at a local hospice. In between those commitments I need rest and because one of my complications form SLE is pulmonary hypertension that causes quite a bit of shortness of breath.

Just rereading what I’d written in the second and third paragraphs tuckered me out! Oh, I forgot the part about water exercise classes that I took 3 times a week. Not only did I take the classes, but I needed to wear oxygen; which meant  I was continuously vigilant about making sure I had enough of the right kind of tanks.

I’m constantly fielding questions from insurance companies about payment for tests and procedures, trying to keep a house neat (thank goodness I have the most understanding husband in the world!). Do you find yourself making a sea of lists to ask this doctor and a list for that doctor? Life shouldn’t be so; well for lack of better word, busy!

To what end am I given so much time, but have so few accomplishements to show for it? You’d think I’d have the perfectly clean house all the  time, but truth be told, I’m drowning! Keeping afloat is what keeps me busy!

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7 Responses to “How do you occupy your time?”

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3 | Annie
August 26, 2011 at 7:22 pm | edit

THanks so much for your comments. I enjoyed shedding light on the many issues surrounding disability, so if you have a suggestion you’d like me to address, leave a message in the comment section; that way I’ll get the message!

4 | Lois Roelofs
August 27, 2011 at 10:55 am | edit

I agree that just staying well can be a full time job. As a nurse, I know this from former patients, but I also know this from when I or family members and friends suddenly face an unexpected illness that simply consumes all of our time.

Thanks for the upbeat tone of your blog. Attitude helps!

Annie
August 27, 2011 at 11:04 am | edit

Thanks for your continued support, Lois and fun blog of your own!

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4 thoughts on “How do You Occupy your Time?

    • Dear Jesse, thank you for your kind words I try to follow my heart when I rate for this blog and hearing words from you and others like this makes me know that I’m succeeding.

Let us all know how bright you are and share your thoughts!