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4 tried and true tips for enjoying the season!

Hailey Hudson is a young author, blogger, and freelance writer from the mountains of north Georgia. She loves softball, Harry Potter, and her beagle puppy, Sophie. Click here to buy her debut book and follow along as she pursues her career in writing and children’s ministry by following her blog:

When I was younger, Thanksgiving and Christmas were my favorite times of the year. I loved the parties, the lights; anything and everything associated with the holidays. But two years ago, I was diagnosed with a chronic fatigue illness, and things changed. Many times, I was just too tired to enjoy all the holidays. Through trial and error, I’ve discovered a few tips to help me: I’d like to share them with you with you in the hope that what works for me might help you enjoy the upcoming holidays.

Have an escape plan. You may need to have an escape or a backup plan for the season. Tell everyone that your plans need to be tentative and why: over partying and stress bring flares. Never missing an opportunity to educate, explain why committing to everything can be stressful and how stress affects you.

Or, you may need a backup plan for each event. For example, if I have a party or an activity in the evening, I try to get someone else to drive me, because I know I might be too sleepy to drive when the party ends.

Tell people what to expect Do you need a nap each afternoon? Do you have food sensitivities? Does your medicine need to be taken exactly thirty minutes before a meal? What a tremendous opportunity to educate other people. For example, while assisting the hostess prepare hors d’oeuvres, you can tell her that you’re unable to eat ‘x’  because it affects how a medication that you take, works. Bu, tell her that that won’t affect her because you brought a few things that you can pop into the microwave.

More than likely, people will be happy to accommodate you so you’ll enjoy the festivities. If you’re on a restricted diet and have enough energy, bring food so that you know you’ll have at least a few things to eat.

As much as possible, try to space things out. I do this all year round—if I have an all-day event, I know that I’ll need to rest for the entire next day. So, I try to leapfrog days when I’m planning out my calendar. For example, if I have the option of a holiday party one night and breakfast with a friend the next morning, ideally I would choose only one of those events so that I don’t get too run down. No one will mind if you miss something in order to rest. Give yourself permission to take care of yourself, even if that means sitting out on something fun. You, more than anyone else, knows when your body needs rest. Today’s sniffles could be tomorrow’s full-blown flu without proper care.

Self-care is important—but don’t put it into a box. I spent many evenings forcing myself to take a bubble bath and drink tea and calling it ‘self-care’ because that was what everyone preached—completely disregarding that I disliked both! Finally, I wised up and realized that self-care is not synonymous with a bubble bath—self-care is anything that relaxes you. I began reading and painting in the evenings, and found it much more relaxing than sitting in a tub of water; the water is bound to get cold!

Only you know your body. How you relax is 100% your call, but if you’re like me, in an attempts to be everything to everyone, you’ll forget YOU. So, make sure to make time for whatever relaxes ‘you;’ write it on your calendar if you need to. If you’re not proactively taking care of yourself, you will crash and burn and regret it. I’ve been there and trust me, it’s not pretty!

The bottom line here is this: the holiday season is hectic, but make your health a priority. If you take care of yourself, you will be able to enjoy the holiday, and you’ll love the season and all it has to offer once again. Happy Holidays!


 

 

 

 

 

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Bone Fractures in lupus and other immune diseases

Short post departmemt. I just watched several videos on YouTube (where we all go for health informatIon!!) NOT 😐  The videos I found were more than interesting; both were of interviews with physicians at the meeting of the ACR (American College of Rheumatology) attended by some 15000 members.

One physician spoke of bone fractures and lupus. Were you aware that people with lupus are at an 8 times greater risk for sufferring from bone fractures? That the risk of lupus with kidney disease is more than 10 times? I sure wasn’t; the video:

Then, another physician sampled some 3000 individuals taking plaquenil (hydroxycholorquine). All lupies know of the connection between peripheral field blindness and Plaquenil and the need to have visual field studies every 6 months. Right? Read on! Of 3,000 lupus patients taking plaquenil, 0 suffered from visual field problems which lead to blindness. The blindness resulted was due to other conditions, possibly diabetes or macular degeneration.

 

 

 

 

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Immune-Suppression

Virus in blood – Scanning Electron Microscopy stylised

Finally, the combination of methotrexate, prednisone and Plaquenil™ had been titrated for my Rheumatoid Arthritis and worked ‘like a charm.’ But, after about 8 consecutive months on this ‘cocktail,’ I developed pneumonia. Strange thing; I had also been on these same meds a year ago, when another type of pneumonia was diagnosed.

In both peumonias, the ‘culprit’ was determined to be methotrexate. Methotrexate causes pneumonia? Not directly but when the immune system is suppressed by methotrexate, the body is susceptible to other germs. Not only is this true of methotrexate, but of prednisone, Humira™, Rituxan™ and other medications used in the treatment of autoimmune diseases. This supression of the immune system: immune-suppression.

These meds really stop inflammation, but at an expense. That expense? They can leave your immune system unable to mount a defense against foreign invaders. That’s why you see this admonishment in advertisements for the above meds: “make sure that you tell your doctor about any infections you have and avoid going to large public places.” My solution: have an intimate dinner at home and invite a few friends-who don’t have colds! Continue reading

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Steroids-“when they’re good, they’re very, very good; but when they’re bad, they’re horrid”

 

I used to be skinny, so skinny, that jokes followed me around. Yep, people said, “she’s like a McDonald’s hamburger; so skinny, she only has one side;” that sort of thing. Then I was diagnosed with lupus and all that changed Why?

Meds commonly used for autoimmune symptoms are often non-steroidal anti-inflammatories drugs or NSAIDs. While they don’t pack on the pounds, if symptoms worsen and other meds which include  prednisone, Decadron™ or Solu-Medrol™ are used, watch the scales for weight gain which can increase the problems one has with ‘carting around’ extra weight.

It is known that steroids cause fluid retention and an increased appetite; both of which will increase weight rapidly. All of a sudden eating that second piece of pie is completely normal behavior! Another way is theorized: interference with fat metabolism and a redistribution of body fat.

But, steroid medications do have a good effect, one so good that having the moon face and other side effects of steroids is sometimes worth the side effects. Steroids are so good at relieving the inflammation which causes the discomfort and some of the life-threatening side effects from autoimmune disease (for example, the joint pain from RA) or the inflammation of the lung lining: pleurisy. Without them there would be more pain and aches.

Steroids also play a huge role in the treatment of asthma. The asthmatic would also have to make the choice to suffer the side effects of steroids or to breathe. Kind of an untenable choice, don’t you think? But there is an increased risk of osteoporosis due to their effects on the bones. 

Also, because there is redistributing of fat, you don’t have to take steroids for autoimmunity. Ashley Judd took high dose of steroids for a sinus infection and as beautiful as she is, you can see the impact of steroids on her face.

But there are ‘new kids on the block’ which don’t have the risk/side effects of steroids; Rituxan™, methotrexate™, Benlysta™ and a host of others.

 

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What inspiration!

We can’t be serious all the time; we need some relief every now and then. This video will help you take your mind off your troubles for a while. So sit back and relax and enjoy!

 

 

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Autoimmunity took my teeth and mouth hostage!

 

How Autoimmune Disease Impacts Oral Health

Did you know that people who suffer from immune diseases have an increased risk of developing oral health conditions and gum diseases? Numbered below are common immune diseases and how oral health is impacted by them:

  1. LUPUS ERYTHEMATOSUS

The inflammation caused by lupus affects the mouth and tongue. This inflammation, can cause sores on the lips, palate and inside the cheeks. In extreme cases patients may also experience burning of the mouth and lack of saliva. Since saliva normally washes away food, sugars and bacteria, a lack of it can result in dry mouth and an increase in dental caries. Dry mouth increases the risk of decay and yeast/fungal infections of the mouth. Tooth decay can incrase the need for fillings, the need to extract teeth, dentures to replace missing teeth or ineffective chewing which can result in stomach and digestive problems

     2 RHEUMATOID ARTHRITIS

Rheumatoid arthritis causes inflammation of the joints, and Rheumatoid Arthritis patients can experience inflammation of the temporomandibular joint (TMJ). TMJ patients experience extreme discomfort while performing any activity using their mouths: chewing and talking, opening their mouth at the dentist, eating. They may also experience facial pain, headaches, earaches, locking of the jaw, worn teeth and ringing in the ears. In a few cases, TMJ is caused by misalignment of joint and often expensive orthodontic treatment is needed to lessen or prevent the symptoms.

People suffering from Rheumatoid Arthritis can also have Sjögren’s Syndrome, an autoimmune disease of the salivary and tear glands. Sjogren’s causes severe dryness of the mouth; thus creating problems with chewing and swallowing  and dryness. Because of this dryness there can result in heavy plaque deposits on the teeth. This in turn increases the chances of tooth decay and periodontal gum disease. Because of oral dryness and food not being completely digested when it leaves the mouth and difficulty swallowing,Sjogren’s patients also experience pneumonia because they choked on food. .

     3.SCLEORDERMA (Progressive Systemic Sclerosis)

Scleroderma is known for it’s hardening of the skin; often the lips and tongue are involved. As the effects of this increases, the mouth becomes narrower and the lips and tongue grow more rigid. A tightened mouth makes it difficult to open or move the jaw, thus causing difficulties cleaning the mouth. This increases the risk of developing tooth and gum infections, including periodontal disease or tooth caries.

     4.THYMIC HYPOPLASIA 

Thymic hypoplasia, (DiGeorge’s syndrome) causes abnormal growth of the thymus and parathyroid glands, leading to a white blood cell deficiency. Therefore, people with thymic hypoplasia are prone to viral and fungal infections, especially in the mouth. Oral Candidiasis, thrush, and herpes are some of most common fungal infections that affect those suffering from Thymic hypoplasia. In extreme cases, Thymic Hypoplasia affects the mouth and jaw, resulting in improper development of the palate resulting often in a cleft palate, a split uvula, a receding chin, or a shorter-than-normal distance between the nose and the upper lip.

     5 DERMATOMYOSITIS

Dermatomyositis is an inflammatory muscle disease that causes unusual skin rashes. It affects women more than men and can affect people at any age. Muscle weakness in the head and neck are the more common signs of dermatomyositis. This is especially concerning as it can also lead to difficulty in swallowing and chewing, and those suffering from Dermatomyositis may have hard bumps inside their face and tongue.

As you can see, each of the above mentioned diseases can have adverse impacts on the health of your mouth. Since the condition of your mouth directly impacts the functioning of your mouth and digestive system, the above mentioned diseases can drastically affect your overall health. If you have been diagnosed with any of the diseases mentioned above,  I can’t stress enough the necessity of meeting with your dentist, explain the concerns you have about your mouth and find out what you need to do to avoid the chances of complications due to oral dryness.

 

Author Bio:

Emily found the perfect fit for herself as the Online Marketing Manager at Thurman Orthodontics in Fresno CA. She believes that a great smile does more than just make a person look great – it makes them feel great as well. The power of a smile has always been a mystery to Emily that she solves by researching and writing about. She loves to write about everything to do with a healthy bite and a beautiful smile – whether is it ways to achieve it or the importance of it in the various aspects of life. What brings a big smile on Emily’s face is her family and surfing. She also likes to bake and her children and co-workers call her the cookie fairy!

 

 

 

 

 

 

 

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