Maybe it’s the wolf, maybe the chronicity of the illness, but we’re a tenacious bunch. Like John Cameron Swazye said about the Timex® watch, it “takes a lickin’ and it keeps on tickin’;” patients who have lupus or any other chronic illness have learned life the hard way and have gone to the school of hard knocks.
We’ve juggled family, work, and our own lives around doctor’s appointments and hospitalizations. The demands of all of these can be tremendous; now, throw the other things I’ve just mentioned into the mix and all of a sudden, you might have a major “CALGON®, TAKE ME AWAY!” moment.
I count my lucky stars that I have a husband who has stayed with me all these years. It’s hard and we’re all here to attest to that. This is in honor of those who haven’t been so blessed; to you, I raise a glass.
To me, people who have lupus or another chronic illness are synonymous with that Timex™ watch; they’re durable and strong, take a lickin’ and keep on tickin.’ They suffer the indecencies of hospitalization, have patience in spades and I could go on and on, but I think you get ‘the drift.’
Sure, not every day is a good day; and rarely a day goes by when we’re not reminded of the compromised kidneys, lungs, bones and joints from the prednisone-induced osteonecrosis, aches and pains; only to hear, “but, you don’t look sick!”
Above was not an all-inclusive list as we all know, so please don’t feel left out if your complication wasn’t mentioned. We all know what it is and respect you for putting up with it. If you need to cry, talk, in another way vent, come on and have ‘Coffee with Annie’ on a Saturday morning or fill out a confidential form in ‘Ask Nurse Annie.’ It might make you feel a lot better just to yak; I know I feel better when I talk to someone who knows what I’m talking about. Together we’ll do better.
As the saying by Mother Teresa goes, “”I know God won’t give me anything I can’t handle. I just wish He didn’t trust me so much.”