Once a patient learns he has lupus, possibly the next question that arises is how to make a living with lupus. A diagnosis of lupus stays with you for the rest of your life. That is the reason that figuring out how to live with lupus includes making a few changes-physical, emotional, otherworldly and possibly spiritual-inside your family, at work and inside your social circles. As a rule, these changes will change how you see yourself.
It is vital to understand the critical distinction between seeing yourself as a person who happens to have a chronic disease and seeing yourself as a person who is defined by being a chronically ill individual whose ‘lot in life’ is to be sick. I’m here to help you learn to see yourself as that individual who happens to have a chronic illness.
What do I need to do to continue working with lupus?
Whether you were newly diagnosed with lupus or are a long time lupus patient there are some vital points to remember that are critical for your overall well being. Besides, establishing a good relationship with your doctor and having a support from your family and understanding the basics of the disease very well. These are some important tips to towards a happier life with lupus.
- Maintain a Positive Attitude
Having a positive outlook and forward thinking are perhaps the two biggest steps towards living as happily as possible with lupus.. Your attitude plays a key role in your symptoms because stress, anxiety and negative thoughts impact your overall state of wellness. Choosing a positive attitude and making a commitment to enhance the quality of your life will ultimately lead you to cope up with the daily and ongoing challenges of living with lupus.
Sometimes maintaining that positive attitude is hard, very hard and seems to be impossible, but this is why it is important that you build into your life a support system; this system may include your church, friends and loved ones who understand what lupus is, if only marginally, and how lupus affects what you do and prevents your from doing the things that you used to love to do. They should also understand how not being able to do those things affects you. Equally as important is to understand that as of now, there is no known cure for lupus and that learning to live and cope with lupus and its challenges needs to be part of your lifestyle.
- Maintain a Healthy Relationship With Your Doctor
Since Lupus is an ongoing, chronic disease you will be spending a great amount of time with your doctor over the years. Learn to make it quality time. It’s also very important to develop an honest relationship with your doctor and develop an ability to discuss each and every issue related to lupus. It is also very important to visit your doctor regularly and follow the medication regimen he or she prescribes; as well has have all the blood and lab tests he deems necessary, on regular basis.
- Develop Strong Relationship With Employers, Coworkers and Family Members
A strong and reliable support network is important when dealing with lupus. Teaching family, loved ones, employers, coworkers and those closest to you what lupus is, will make them to understand the disease well and what you are going through. This will help them to extend their support and love towards you. They will then understand that you have ‘good’ days and ‘bad’ days and that you can be counted on to ‘give more than your all’ on ‘good’ days.
A strong and reliable support network is important when dealing with lupus. Ssupport group and online networking with other lupus patients will help you to reach out and share the information and inspire each other. Teaching family, loved ones, employers, coworkers and those closest to you what lupus is, will make them to understand the disease well and what you are going through. This will help them to extend their support and love towards you. They will then understand that you have ‘good’ days and ‘bad’ days and you will give more than your all on ‘good’ days. And also, support group and online networking with other lupus patients will help you to reach out and share the information and inspire each other.
- Take An Active Role to Remain Healthy
Lupus patients need to take an active role to remain healthy throughout their life. One of the best approaches is to keep a diary of how your body feels. Paying close attention to your body, symptoms you may experience and documenting those symptoms is an important way to determine which medications work better for you and what trigger your symptoms.
- Include Exercise In Your Daily Routine
Exercising/working out is an essential part to make a happy living with Lupus. Talk to your doctor to the safest exercise options and include them in your daily routine, but some form of exercise is a must. See about including walking, yoga or Pilates are any kind of exercise, which improves your muscle strength and decreases stress.
- Follow Precautions While You Are In The Sun
It’s best to develop the habit of applying sunscreen while you outside and reapply it for every 2-3 hours while you are in the sun. And also wear a wide brimmed hat to protect your face and neck. It has even been suggested that sunscreen should be worn indoors, too.
Obviously no one wants to have a chronic disease with no current cure. But today people who have lupus are living longer and can set attainable goals. But, ge kind to yourself and know that you are not alone and don’t set unattainable goals. Work closely with your doctors for a wellness plan and reach out to those who love you and stay motived and positive. And if in the case of any emergency please make sure to have an EHIC card with you for a medical treatment if you don’t live in the US.
~Ruby Andrew lives in Bristol, UK and is an avid reader and blogger. Since her early years she’s had a passion for writing. Her areas of interest are food, reviews (Book/Movie), Travel, Fashion, Lifestyle,Fitness and Wellness. She works as a guest blogger on her chosen areas of interest and currently writes on behalf of EHIC Card.
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