This page will consist of various articles about clinical trials, what they are, how to find them and what questions to ask before you sign ANY consent to be in a clinical trial. Often, there will be information about clinical trials that are conducted online or in your area. Click on the image to find out more about the clinical trial that image represents. Clinical trials are what got Benlysta approved as the only med that is now FDA-approved in the US to treat lupus. Will your help get the next medication approved to help someone else?
The clinical trials I showcase will not all be for lupus, they may not all be for autoimmune diseases, but all are about health and curing disease. Give thought to participating, I will give you solid reasons to and not to, but the bottom line is always a decision you make with YOUR DOCTOR.Hits : 0
Welcome to my blog; I’m Annie, the Lupus Guru! I’m self-taught (much of it by ‘on the job training’!) and also my experience as a nurse. For sure, this helps me understand some of lupus’ complexities, so I can explain them more easily. However, I need to make it clear that I still don’t know it all!
Because I worked as a freelance writer, I learned to present material and organize information so that I could write about it and hopefully in a way that decodes doctor-speak!’
I think that as we learn, we become empowered and develop the knowledge to learn how to listen to our inner voice; then we will know what questions to ask of doctors or other healthcare providers.
I also feel that the more you understand, the more you’ll know and then be able to explain and teach friends and loved ones why you may be experiencing certain symptoms or basically what this or another autoimmune disease can do to you and how it can impact your life.
That said, NOTHING included in this blog, including comments, is ever meant to substitute for advice from your personal physician. Your doctor knows you, your medical history and you laboratory values, so is much more prepared, though doesn’t always have time to teach.
Last, but not least is mention of a book that I feel that everyone (patient and caregiver and friend/loved one) should have in his ‘lupus library,’ The Lupus Encyclopedia
If you have concerns, complete the form on the front of this page to CONTACT THE LUPUS GURU and I’ll return your form. The forms don’t go to a public mailbox, rather these go to a private mailbox that I check daily.
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